Tomorrow is kind of a big day for Little Miss Throwsafit. As I’ve mentioned before, she has hypotonia (low muscle tone). Her low tone affects all the muscles in her body as well as her joints and ligaments. The biggest issue for her has been learning to walk. For a long time her muscles could [...]
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Holding my breath that no one else gets sick
Little Man was down for the count last weekend with a fever of about 102. I don’t think it was H1N1 since he didn’t have a severe cough. The only symptom that showed up was nasal congestion that has lingered, which made Little Man look droopy for days. My husband and I kept him home [...]
Hypotonia and one of its effects
Little Miss Throwsafit’s hypotonia causes her to have constipation. We give her Miralax every day but the dosage can be quite a tightrope. If we don’t give her enough, she’s severely constipated. If we give her too much she gets diarrhea. What makes this especially tricky is that the constipation can manifest itself suddenly. One [...]
A new MRI scan
I got a call today from Little Miss Throwsafit’s neurologist at the University of Michigan. He finally got a look at her original MRI that was done in May 2006 (we had a heck of a time getting a CD of the scan sent from Toledo to UofM – don’t ask) and although the report [...]
Thankful Thursday or Life Doesn’t Suck as Much as I Thought Thursday
I’m not sure how I’m feeling yet this morning, so I’m using both titles. The first is nice and sweet; the second has an attitude. I’m loving Thursdays. Part of the reason I’m so thankful for Thursday is because this is the day Little Miss Throwsafit’s therapists come to our house. For her other physical [...]
Thankful Thursday
I am thankful for Fussy’s post about her son, Joey. He, like my daughter Little Miss Throwsafit, has hypotonia and speech apraxia. The main difference between our kids is that LMT didn’t have External Hydrocephalus. I was so excited to read her post about Joey, because, after hours and hours of physical, occupational, and speech [...]
A long day’s journey
Little Miss Throwsafit had another doctor’s appointment at the University of Michigan hospital in Ann Arbor today, so we were up early and out the door at 6:45am for a 10:00am appointment. This time it was to see her neurologist, Dr. Leber. When she saw him last year, she had just turned 2 years old [...]
Ability Tuesday
This is a neat idea. Debbie at Three Weddings has a meme going called Ability Tuesday for moms of special needs kids. The purpose is to focus on what our kids can do not what they can’t. This is what my daughter, who has hypotonia and speech apraxia, can do: she can hug her own [...]
